DISABILITY PRIDE MONTH July 2025
I said to my soul
“ I’m confused - I’m supposed to feel pride and apparently I’m inspirational, I feel neither, the system depletes me…..”
I asked my soul how she feels about that.
My soul replied.
“ Oh my darling, I feel so sad that you feel an expectation on you that weighs you down so heavily. You are magnificent in your imperfection; that is why you are pure love. I stayed with you, I promise I never left you when I felt your breath leave you. When you returned with so much love to your new way of being in this world, I held you. I witnessed predators invade your space for their own self-gratification, for science. When they ignored my protection over you and your courage to continue in such ill health you were so transformed. You are a story of unspoken words so tender and fierce held lovingly in your body.”
I’m listening, I held my head on the side smiling in reply.
I asked my soul about the wound I hold.
“It takes another spirit open in awareness and heart with non-judgment to be beside you with the wound. Witnessing. To know how deeply you long to be with the light within your wound. The being beside is like the touch of a feather barely on your cheek, it’s there and then it’s not.”
I understand, I said to my soul, it’s non-intrusive.
And what about the shame?
“Ohhhh, the shame, I weep for all the times you turned away in shame because the words you share, were taken with greed not the love in which you wrote poetry from your precious heart. The cocoon you weave is so intricately decorated that the completeness of another cycle adds another layer to my depth and we are so connected in our creative gifts as we tumble around together in space. There is no shame my darling. Lean into me, breathe with me and feel your song.
You were destined to be in cracks and gaps,
I love your words, your ways,
Your bends, your sways.”
You love me unconditionally? I asked.
I love you unconditionally, I never left you in your isolation, I was here all along waiting while others who couldn’t watch your developing cocoon left to weave their own webs of life.
And that’s the way it is I nodded in reply.
We watch
We leave
We wait
We weave
But you never go
You are my whisper
For the fresh new day
In the evening
You are the one who’ll say
I am grateful
For allowing me to know you
I love you unconditionally
A love so tender, always new.
Ninaxx
I